Max's Ring of Fire supports the Neuroblastoma and Medulloblastoma Translational Research Consortium or NMTRC.

The Neuroblastoma and Medulloblastoma Translational Research Consortium (NMTRC) is a group of 18 universities and children’s hospitals headquartered at the Helen Devos Children’s Hospital that offer a nationwide network of childhood cancer clinical trials. These trials are based on the research from a group of closely collaborating investigators who are linked with laboratory programs developing novel therapies for high-risk neuroblastoma and medulloblastoma.

Their mission is to create a national collaborative effort of researchers, oncologists and family advocates to bring forward new therapies for children with relapsed neuroblastoma and medulloblastoma with the goal of improving the quality of life and survival of children with neuroblastoma and medulloblastoma.

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We need your DONATIONS to help us give researchers and doctors the tools they need. 100% of every donated dollar is guaranteed to fund meaningful neuroblastoma research and clinical trials NOW!

An ongoing inspiration for many people, Max was born on June 30, 2001. He was diagnosed with stage IV, high-risk neuroblastoma in October 2004. He whizzed through frontline treatment and by the following summer was effectively on the road back to a "normal" life - albeit with almost total hearing loss, a new immune system, and about 10lbs to gain back, all courtesy of Mr. Chemo.

Unfortunately, Max relapsed (as most high-risk NB patients do) in November 2006. Max fought bravely, entering a clinical trial in Vermont where he received nifurtimox in combination with other chemo agents. This combination diminished the disease until there was just one tiny spot still evident on his spine. But in February 2008 the beast came roaring back and we could never control it again, despite everything we tried. Max passed away on August 31, 2008 at 8:45pm in his mommy and daddy's bed.

Read more of Max's incredible fight.

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Monday
Oct042010

Touch A Truck '11 Volunteer Call!

We are waving the green flag here at Touch-A-Truck San Diego Headquarters! Yes – planning for 2011 has begun and we need YOU to make it to the finish line!

Following the great success of Touch A Truck '10 we put on our thinking-caps and came up with some great ways to make volunteering for the event easy as pie… we divided the projects into smaller and easier to chew bites! Instead of having six project managers responsible for the whole event, we’re looking for 28 Project Managers to oversee much smaller pieces of the big pie. Yummy! There is also lots of room for folks to help as “support.”

No matter how big Touch-A-Truck gets, it will always be a community-grown event. All backgrounds and experience are welcome - from event planning professionals to stay-at-home-moms (like me!) with a heart and time to commit to a great cause.

When you bring people together to serve a common goal (in this case raising money for kids’ cancer research), where everyone is volunteering their time and energy, the positive emotion of the event is reflected at every point of contact. People volunteer from their heart and it shows. This is where we’ve found that Max’s Ring of Fire really defines itself: the ring grows and intensifies with everyone who jumps in. The ring is love, caring, serving, helping. It’s a good burn – no SPF needed!

HOW can you help? Here’s a list of the projects we need leadership for, to bring Touch A Truck '11 to the checkered flag:

(For the detailed list, please click HERE - Word document)

Generate Revenue $$

  • Sponsor Team
  • Donations at Event
  • Kids Raffle
  • Lemonade Stand
  • Event T-Shirts
  • Food Vendors

Bring People in

  • Flyer Distribution
  • Internet Promotions  
  • TV & Radio

Create a Safe & Enjoyable Environment

  • Parking & Traffic Control
  • Security Personnel
  • Signage
  • Restrooms
  • Fencing/Barricades & Trash
  • MROF Info Booth
  • First Aid/Lost Parent/Lost & Found Booth
  • Vehicles/Participants

If you’re interested in some of the projects, but feel like they’re too big, or seem too detailed, give me a call and I can answer your questions, explain the project(s) further and, most likely, set you at ease.

Please call or email me - or click here to fill out our volunteer form. I’m here and I’d love to get you onboard!

Melissa Mikulak
mel@maxsringoffire.org
619-990-1234

 

 

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