Max's Ring of Fire supports the Neuroblastoma and Medulloblastoma Translational Research Consortium or NMTRC.

The Neuroblastoma and Medulloblastoma Translational Research Consortium (NMTRC) is a group of 18 universities and children’s hospitals headquartered at the Helen Devos Children’s Hospital that offer a nationwide network of childhood cancer clinical trials. These trials are based on the research from a group of closely collaborating investigators who are linked with laboratory programs developing novel therapies for high-risk neuroblastoma and medulloblastoma.

Their mission is to create a national collaborative effort of researchers, oncologists and family advocates to bring forward new therapies for children with relapsed neuroblastoma and medulloblastoma with the goal of improving the quality of life and survival of children with neuroblastoma and medulloblastoma.

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We need your DONATIONS to help us give researchers and doctors the tools they need. 100% of every donated dollar is guaranteed to fund meaningful neuroblastoma research and clinical trials NOW!

An ongoing inspiration for many people, Max was born on June 30, 2001. He was diagnosed with stage IV, high-risk neuroblastoma in October 2004. He whizzed through frontline treatment and by the following summer was effectively on the road back to a "normal" life - albeit with almost total hearing loss, a new immune system, and about 10lbs to gain back, all courtesy of Mr. Chemo.

Unfortunately, Max relapsed (as most high-risk NB patients do) in November 2006. Max fought bravely, entering a clinical trial in Vermont where he received nifurtimox in combination with other chemo agents. This combination diminished the disease until there was just one tiny spot still evident on his spine. But in February 2008 the beast came roaring back and we could never control it again, despite everything we tried. Max passed away on August 31, 2008 at 8:45pm in his mommy and daddy's bed.

Read more of Max's incredible fight.

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Thursday
Jan202011

Volunteering - It's good for you and good in the fight against childhood cancer

Touch A Truck 2011, like Max's Ring of Fire itself, is run by a 100% volunteer, unpaid staff. That allows for 100% of the money we raise to go directly to support cutting-edge research and treatment studies for kids battling cancer. Without strong, committed and resourceful adult (and kid!) volunteers, Touch A Truck won't happen! Please take a moment to review the kind of tasks that need an owner to take charge and make things happen. Max's Ring of Fire provides support, connections and a guide for each task, but it still takes imagination and commitment to make each task come alive and help add to the event experience for all.

If you feel the urge, you can register your interest here: http://www.touchatrucksd.com/volunteer or simply email mel@maxsringoffire.org

OPERATIONS HEAD NEEDED

Recruit task leads, manage and oversee the design and implementation of the following areas below - note that some of these tasks have existing people leading them with support staff already in place - others need a task lead to be recruited.

Operations Tasks in need of Leaders/Support

  1. Vehicles
  2. Parking & Traffic Control
  3. Security
  4. Signage
  5. Restrooms
  6. Information Booth

  7. First Aid

  8. Lost Parent/Lost & Found

 

Marketing Tasks in need of Leaders/Support

  1. Flyer/Poster Distribution

 

FUNDRAISING HEAD NEEDED

Recruit task leads, manage and oversee the design and implementation of the following areas below - note that some of these tasks have existing people leading them with support staff already in place - others need a task lead to be recruited.

Fundraising Tasks in need of Leaders/Support

  1. Donations (at event)
  2. Tee-Shirt Sales
  3. Food Vendors